I hope you’ll take a look at Susan Axelrod’s blog, at cureepilepsy.wordpress.com.
As I’ve written before, my husband and I had dinner with her Friday evening to discuss epilepsy and how it has affected our lives. She is the founder and chair of C.U.R.E., Citizens United for Research in Epilepsy, and I couldn’t be more complimented that she chose to spend time with us.
See her post titled Sharing Our Stories, dated Oct. 15. In the picture of the three of us, that’s me in the middle.
She really is an exquisite listener, and I was complimented by the way she wove the details of my story into the larger vision of C.U.R.E.
October 16, 2012 at 5:16 am
Hi Maggie, as therapist, I worked with people with epilepsy and am very mindful of the challenges this brings to daily life. Its the not knowing when and where next which is hard to live with. Looks like you have a good deal of support with your husband though.